Fashion and celebrity photographer, Angelea, has launched LET THEM STARE, a photography project that will celebrate both physical and invisible differences among individuals. To help redefine the term, “disability,” she is showcasing ableism and how individuals can thrive.
Angelea was born with a rare condition called VATER syndrome, also known as VACTERL association. VATER (VACTERL) is an acronym that stands for the affected parts of the body, including the vertebrae, anus, cardiac (heart), trachea, esophagus, renal (kidney), limbs/radius. Throughout childhood and adolescence, she underwent over 20 major surgeries for repairs of a tethered spinal cord, anorectal malformation, anal atresia, severe scoliosis, neurogenic bladder, and more. Angelea was born without an anus; thus, bowel management has always been an “invisible” part of her health journey. Thankfully, pioneer surgeons like Dr. Alberto A. Peña made it possible for affected individuals to overcome this tremendous hurdle, with the Malone appendicostomy procedure, which allows you to empty the bowel with an enema through a small tube in the belly button.
Angelea’s scoliosis and petite stature of 4’7” has always attracted the unsought attention of others since childhood. Humans have a natural level of curiosity; however, reactions to others’ differences or imperfections are often belittling. She wants to shift the perspective by helping others see beauty and strength, while empowering (giving voice to) children and adults who have struggled to tell their own story; hence, Let Them Stare was born.
LET THEM STARE is beginning with two self-published books, one for children, and one for adults. The children’s book entitled, “Look At Me, Look What I Can Do,” will be photographs of 30 children and adolescents who live with both physical and invisible differences. However, each photo will highlight what they love doing beyond their difference. Angelea wants children to start seeing and understanding differences at an early age. In addition, she wants children who are living with beautiful differences to never feel alone. Mental health is a significant component with any medical condition. When a child learns there’s someone else who may have a similar story, there’s an instant sense of belonging that often sparks resilience.
The adult book, "Let Them Stare,” will be a fashion-forward coffee table book comprised of photographs of 100 adults who also live with both physical and invisible differences. The goal of this book is to dynamically and visually bring inclusion to the fashion industry, and for adults who live with differences to feel seen and empowered. Angelea hopes her vulnerable share, around situations she for years felt shame around, will help liberate herself and others. “The differences you were told you have from doctors are not what define you. There’s so much more to you, like your talents and gifts. Being a good friend, wonderful parent, caring sibling, musician, writer, or athlete. We may have to do a little extra every day to thrive, and that’s okay. Don’t ever let the extra things stop you from chasing your dreams.”